It's The Simple Things...

Criss cross, apple sauce...

His hips and legs were always too tight for him to comfortably sit this way and still be able to play...not now, though!

Two Weeks Post-Op

Visible results makes Momma a happy girl! Davis started standing independently today! Woo Hoo!!! Proof that he's regaining strength!

See how Davis' knees turn inward when he moves in this video??? Well, I was encouraging him to take steps today and noticed this same knee-turning-in pattern; only in a much 'looser' fashion. I brought it up in therapy today and, after witnessing the same thing, his therapists explained to me why he does this...to compensate for his weak hips. He's 'flinging' his legs forward to walk instead of using his hips to help him move. They decided it would be best if Davis didn't do any walking until we can get his hips really strong. We want him to slowly learn how to walk the 'right' way instead of quickly walk the wrong way.

And, Danielle, your wish is my command!

Staples, Therapy, Pudding, and Sister

Davis got his staples removed this morning! Having had a c-section only 4 months ago, I can vividly recall how painful this is. It took all 3 of us (nurse, Justin, and I) to pin his poor self down while she plucked all 26 staples out. Yikes.

The nurse thought his incision site looked great and cleared him for physical therapy.

So...to therapy we went!

His PT, Kelly, and two other therapists at the clinic will be working together to help rebuild Davis' strength and retrain his mind and muscles to walk 'the right way'! We're in for a long, rigorous ride, but the results should be so worth it!

Miss Kelly is measuring his range...

My pal, Stobbe, brought Davis a tasty treat today...homemade chocolate pudding!!! He's soooo excited to dive right into it after dinner tonight! Thanks, bro! So thoughtful!

And...appearing on Davis' blog for the first time, I present to you, the prettiest and sweetest Baby Sister EVER!!!

So This Is What Outside Looks Like? I Almost Forgot.

Finally...some time away from the house. Some time away from caring for a recovering child. Some time for me. I needed it. For my sanity.

Reese and I went to the mall yesterday afternoon while Justin stayed home with Davis. It was so nice to just walk around, interact with the public, eat some delicious pretzels with melted cheese, spend some money! And Reese is such a good shopping buddy! So content and smiley and pretty!

Besides the couple of hours I was able to get away to go try on Bridesmaid's dresses for Mandy on Monday, I had been locked behind closed doors, taking care of my Davis, for 9 days. Nine straight days! I hadn't put on a pair of jeans, driven a car, wore mascara in over a week! Yucky.

And I have to hand it to Justin...he's been so helpful and involved with all of this. I couldn't do it without him! (He reads the blog now, so I had to throw him a little shout out!) Love you Husband!

Worry Sets In

I knew this was gonna happen...A small amount of panic entered my body yesterday. I started thinking 'what if they messed up?' 'what if they removed too much spasticity and now he's too weak?' 'what if he'll never walk again?' I had these unrealistic expectations and, when they weren't met, I began to worry. Also, I spoke to other mothers whose children were independent walkers before SDR and were back up and walking again after only a week of recovery. So I called the nurse. "Should I be worried because I was expecting Davis to be able to walk again at this point and he can't even stand up on his own." "No. Not at all." She assured me that his high level of weakness at this point is to be expected given the amount of tone that the doctor removed. Once he starts intensive therapy next week we should see his progress really take off. I also vomited some sentences about how his incision is much larger than we thought it was going to be. The nurse told me (for the second time!) that the doctor had to go up higher on the spine once he found so much spasticity in his back.

I breathed a sigh of relief. My heart rate normalized. All is well. Just stay patient, Andrea. This is gonna take time. Time. Time. Time.

Phone Follow-Up

Per her instructions, I called Dr. Boydston's nurse today to give her an update on Davis' condition.

Do you see any CSF leaking from the site? No.

Do you see any redness or swelling? No.

How is his pain level? Seems to be low.

When you do your routine exercises with him, are you getting him up to walk around? Yes.

Is he able to walk indepentently or does he need your assistance? He needs our full assistance.

Ok, let me talk to Dr. Boydston and see if he thinks Davis is ready to progress on to more activities. I'll call you back. Ok.

Later...

Dr. Boydston wants to keep Davis' schedule as is until after you guys meet with us next Monday. He can continue to sit up for meals. You can allow 30 minutes in between each meal for sitting up time, as well. Increase that time by 30 minutes each day, as tolerated. And continue to get him up and walk around with him 3 times a day. Alrighty...

First Visitor

Mandy,

Thank you soooo much for coming to see me yesterday! I love the video game you gave me! It's so awesome!

Love,

Davis

What A Morning!

Davis officially can't be left alone for one second right now. Let me get my brush out and paint you a pretty little picture...

Reese and I slept in the bedroom last night, while Justin and Davis camped out in the living room. Justin left for work around 6:30 this morning (tear, cry, boo-hoo, I'm all alone). Davis was still sleeping, so I laid back down until about 7 am. I got up, gave Davis his breakfast (granola bar and milk), and went back to the bedroom to feed Reese. About 5 minutes later, Davis starts screaming and crying. With Reese in hand, I run into the living room and see that Davis has taken the top off of his cup and spilled milk all over his bed and himself. *Reminder: it's only 7 o'clock in the morning. I haven't even had my coffee yet. And Davis CAN'T MOVE on his own right now.* There was milk everywhere. On the 3 pillows strategically placed around his body, his comforter, 2 sheets, THE EGG CRATE, him! It was awful.

I start stripping the bed, removing his clothes, cussing under my breath and, meanwhile, Reese is just laying on the couch, probably wondering when she's gonna get to finish her breakfast.

As I'm giving Davis his second sponge bath in less than 12 hours, I look up to find Reese, in slow motion, sliding off the couch, feet first, onto the floor. She lands on the ground (wedged in between the couch and Davis' bed) and grunts a couple times. I lay Davis down...swoop her up...she smiles...phew. Dodged a bullet there.

Home, Sweet Home

We spent 5 days at Scottish Rite and I swear, when we left today, it seemed like a month had gone by. I'm so glad to be home. So, so glad.

Physical therapy came in again this morning, before we were discharged, and said that Davis had even more range than he did yesterday. What that basically means is that he, on his own, was able to stretch his ankles, legs, etc further today than he could yesterday.

He even tried to walk around...

If you know Davis, you're aware that his legs and feet were extremely tight. You had to use so much force to bend his ankles and stretch out his legs. Well now, he's as loose as you and I. It's so amazing to see. What we have to do now is retrain his muscles and mind to work right, otherwise he'll go right back to the way he was.

He has to stay in the bed for another 3 days, so we set him up in the living room...

Reflect

When we did our stretching exercises with Davis tonight, we could already see an improvement just from this morning! AND he asked if he could sit up (he was not interested in doing this at all this morning)! AND we got him to hold on to me and stand up for a second!

We have a really long road ahead of us, but I look so forward to it. Justin and I have been on such an amazing journey since we were blessed with Mr. Davis. We're smarter, more patient, and overall better because of him. He's opened our eyes and lead us into a world that we would never have experienced without him. He's gonna do big things and I just can't wait to find out what they're gonna be!

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And we could never, ever, ever, never, ever have been able to get through all the tough times without the love and help from our family and friends! We have such an incredible support system!

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...Wow...all this sitting around has turned me into a pile of mush...If I'm here much longer, I might want to hug someone.

Up And At 'Em...Sort Of

Physical Therapy just came in and went over the program we're supposed to follow once we're discharged. We have to, for the next 10 days, complete a list of 'range of motion' and strengthening exercises/stretches. After 10 days, we have to begin incorporating more strenuous exercises. Doing this diligently over the next 6-9 months will teach him to walk a lot more like you and I do. Well, I shouldn't include me as a good walking model. I pretty much trip and lunge forward every time I stand up.

She stretched his ankles, legs, hips, etc. and was really pleased with how much range he has. She knew within a few seconds that he was a great candidate for the surgery. He sat up for a few seconds, but wasn't quite ready to get down and try to walk.

P.S. I just saw a woman, probably a mom, in the room with the baby next door. Phew.

Day 3, Post-Op...The Walls Are Closing In

"I'm not a pumpkin. I'm awesome." Legit statement from Davis' mouth after a nurse had the audacity to refer to him as her pumpkin.

Me: "Hey, Justin we have to 'dail' 9 if we want to make an outside call, according to this board."

Justin: "What?"

Me: "Yeah. 'Dail' 9. See? Simple as that."

Justin: "Wow."

Me: "Yeah, thank God grammar isn't essential to our son's survival here. Good grief."

I've been staring at that damn misspelled word so long that I think it should actually be a real word now. What should it mean???

There's a newborn in the room right next to our's and I have yet to see any adults visiting him. I've been tempted to sneak in there in the middle of the night to rock him to sleep. Pretty sure that might get me kicked out, though. I just miss my Reesey soooo much! I have NO business being away from her for any length of time, I've realized. But my mom brought her up here for a visit yesterday...

When one of the nurses walked in on me pumping Wednesday night, she put this sign on the door.

It's been the running joke around here that everyone probably thinks I'm still nursing my 4 and a half year old son.

Dr. Boydston's (neurosurgeon) nurse came in at about 6 o'clock this morning to remove Davis' bandage and revealed this...

OUCH! And HUGE!

A physical therapist is going to come in sometime today and get Davis out of bed and do some range of motion exercises with him. I'm really excited to get him moving, but I know it's gonna H-U-R-T...

Rhizotomy

I figured I should bring the blog back to life so that I can document this ordeal.

Davis underwent the Rhizotomy procedure to decrease the spasticity in his legs and, through intensive therapy afterwards, hopefully walk a little more 'normal', improve his quality of life, and give him some more independence.

SDR involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord. Two groups of nerve roots leave the spinal cord and lie in the spinal canal. The ventral spinal roots send information to the muscle; the dorsal spinal roots transmit sensation from the muscle to the spinal cord.

At the time of the operation, the neurosurgeon divides each of the dorsal roots into 3-5 rootlets and stimulates each rootlet electrically. By examining

(EMG) responses from muscles in the lower extremities, the surgical team identifies the rootlets that cause spasticity. The abnormal rootlets are selectively cut, leaving the normal rootlets intact.This reduces messages from the muscle, resulting in a better balance of activities of nerve cells in the spinal cord, and thus reduces spasticity.

Before they took him back for surgery, the doctor gave him some meds to calm his nerves, but what it really did was send him to another planet. He acted so drunk, but it was really entertaining and took all of our minds off of what was about to happen.

So, then it was time...Justin and I gave him kisses, told him we loved him and would be waiting for him when it was all over, and completely fell apart when he got out of sight.

After the surgery (and 4 long hours), we met him in his overnight room and prepared for what we thought was going to be a really rough time. But I have to say I now know, without a doubt, that my son is the strongest, bravest, most resilient child I've ever seen. I know he's in pain, but he's only barely mentioned his back hurting. He's supposed to lay completely still, on his side, for 3 days and has complied wonderfully. He's eating and drinking enough to amaze the doctors and nurses. Every 2 hours, the nurses come in to check his vitals and flip him to the other side and that's the only time he cries.

It's Friday now and we've basically spent the last 2 days watching Toy Story and Gumby on repeat. He can't even sit up enough to play Angry Birds on my phone. :(

I plan to take footage of his progress during the next few months...soooo...here's his before shot...